Local news stories contributed by our INAD Families.
Submitted by Christina Martin
One more birthday for the Martin girls, April 2015
https://www.cincinnati.com/story/news/2015/04/11/one-birthday-martin-girls/25532721/
One Family’s Journey With a Rare, Fatal Disease, April 2015
Lebanon girl, 4, dies of rare genetic disorder, August 2015
https://www.cincinnati.com/story/news/2015/08/31/lebanon-girl-dies-rare-genetic-disorder/71475262/
3-year-old with rare genetic disorder going to prom, February 2016
http://local12.com/news/local/3-year-old-with-rare-genetic-disorder-going-to-prom
Lebanon girl, 4, dies after sister succumbs to same rare disease, May 2016
Submitted by Katie Martin Sampson (Click here to be directed to Katie’s Personal Fundraising Page)
The plight of people who battle rare diseases, February 2016
http://myfox8.com/2017/02/28/the-plight-of-people-who-battle-rare-diseases/
Submitted by Jennifer Richard Thomson
Two Acadiana girls battle rare disease, February 2015
http://www.katc.com/story/28076206/two-acadiana-girl-battle-rare-disease
Two girls from Louisiana, both suffering from INAD (Infantile Neuroaxonal Dystrophy), July 2015
Submitted by Mary Galer Herschelman (click here to be directed to Mary’s Personal Fundraising page)
Grace Filled 5K- Sept. 5 at Hillsboro High School, September 2015
http://fox2now.com/2015/09/02/710204/
2nd Annual Grace Cup All-Star Game, June 2016
http://newschannel20.com/sports/content/2nd-annual-grace-cup-all-star-game
County Teams Prepare For Grace-Filled Tourney, July 2017
Grace is among good people of Montgomery County, January 2016
http://www.sj-r.com/article/20160109/NEWS/160109566
5K to benefit research on incurable genetic disorder, July 2017
http://www.sj-r.com/news/20170722/5k-to-benefit-research-on-incurable-genetic-disorder
Grace Race Steps Off In September, July 2017
A Grace Filled Success, September 2017
Submitted by Raymond Veenman
https://www.libelle.nl/mensen/actueel/jasper-valentijn/
Press Releases
Retrotope initiates second patient for Compassionate Use of RT001 for an ultra-rare genetic neurological disease, Infantile Neuroxanal Dystrophy, November 2017