Contact Us at (201) 274–5204

Our Mission

The INADcure Foundation is a 501c3 nonprofit charity whose mission is to support the development of treatments, including a cure, for Infantile Neuroaxonal Dystrophy (INAD) and other forms of PLA2G6-related neurodegeneration (PLAN).

The INADcure Foundation was formed to fund scientific research for treatments and a cure for INAD and other forms of PLA2G6-related neurodegeneration (PLAN). We are working aggressively to build a worldwide collaborative research network to break down silos and enhance collaboration - paving the way for scientific innovation and significant progress that will benefit our children.


We know that receiving a diagnosis of INAD is devastating and can be overwhelming. What is most important to understand is that you are not alone. We are here to help. Connect with other INAD families and join us in our efforts as we work together to #beatINAD.


Funding for INAD research comes from individual donors and organizations who support our mission. We are committed to maintaining the highest standards to allocate donor dollars wisely as we passionately pursue our vision to find a cure for INAD. Donate today or learn how you can support research by creating your own family fundraising campaign!

Newly Diagnosed?

Get Connected with the INADcure Foundation today!

Join out our contact directory to receive the latest information about new treatments and clinical trials, opportunities to participate in research and events,
connect with other families via our private Facebook group, and receive updates about our progress in advancing the search for a cure.

Our Impact

INADcure by the Numbers


Funding for
INAD Research

Provided $765,000 in funding for
INAD-specific research
at 4 renowned institutions


Children Diagnosed
with INAD

Serving over 150 children worldwide living with INAD


Scientific Advisory
Board Members

Providing guidance on scientific research strategy and funding decisions



Offering connection and support for families from over 20 Countries



INADcure Biobank distributes research ready biospecimens to scientists around the world

Family Fundraisers

Support our INAD Families

Ariya’s Wish

7 Years Old | Fairfield, NJ

Bisous for Leo

5 Years Old | Paris, France

Jackson’s Friends

8 Years Old | North Carolina

Click Here to Meet all of our Superstars!

Our Partnerships

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