We’re working on a miracle—pioneering gene therapy research to bring life-changing treatment to children battling Infantile Neuroaxonal Dystrophy (INAD). With your help, we can turn hope into reality.
Our Mission
The INADcure Foundation is a 501c3 nonprofit charity whose mission is to support the development of treatments, including a cure, for Infantile Neuroaxonal Dystrophy (INAD) and other forms of PLA2G6-related neurodegeneration (PLAN).
The INADcure Foundation was formed to fund scientific research for treatments and a cure for INAD and other forms of PLA2G6-related neurodegeneration (PLAN). We are working aggressively to build a worldwide collaborative research network to break down silos and enhance collaboration - paving the way for scientific innovation and significant progress that will benefit our children.
Support
We know that receiving a diagnosis of INAD is devastating and can be overwhelming. What is most important to understand is that you are not alone. We are here to help. Connect with other INAD families and join us in our efforts as we work together to #beatINAD.
Funding
Funding for INAD research comes from individual donors and organizations who support our mission. We are committed to maintaining the highest standards to allocate donor dollars wisely as we passionately pursue our vision to find a cure for INAD. Donate today or learn how you can support research by creating your own family fundraising campaign!
Newly Diagnosed?
Get Connected with the INADcure Foundation today!
Join out our contact directory to receive the latest information about new treatments and clinical trials, opportunities to participate in research and events,
connect with other families via our private Facebook group, and receive updates about our progress in advancing the search for a cure.
Our Impact
INADcure by the Numbers
$2M
For INAD Specific Research
150+
Children Diagnosed
with INAD
Serving over 150 children worldwide living with INAD
12
Scientific Advisory
Board Members
Providing guidance on scientific research strategy and funding decisions
20
Countries Represented
Offering connection and support for families from over 20 Countries
15
BioSamples
Collected
INADcure Biobank distributes research ready biospecimens to scientists around the world
Do you believe in miracles? We sure do! In fact, we’re not just believers; we’re creating a miracle, and we want YOU to be a part of it.
Imagine a child reaching developmental milestones – crawling, saying ‘mama’ and ‘dada’ – only to have these abilities taken away before their second birthday. That’s the cruel reality of INAD/PLAN. In their last years of life, children cannot communicate, walk, sit up, or even eat on their own. INAD/PLAN is a devastating disease that takes away all a child can do, and when there’s nothing left, it takes the child, too. Sadly, most children don’t make it to their 10th birthday.
But there is hope. Scientists agree that gene therapy holds promise for treating INAD/PLAN. It has the potential to spare future families from unimaginable pain, as well as provide children like Sage, Ariya, Adrien, Zaidee, and Rex a real shot at fighting back. But we must move fast – the sooner kids are treated, the more likely they will have favorable outcomes.
Our Partnerships
