Contact Us at (201) 274–5204

Thank You for Sharing your Child’s Memory.

We are so sorry for your loss, and send our deepest condolences to your family and loved ones.

INAD is a complicated neurodegenerative disorder and these stories help us better explain how Infantile Neuroaxonal Dystrophy (INAD) and other forms of PLA2G6-related neurodegeneration (PLAN) impact hundreds of children and their loved ones around the world. Every family’s journey with INAD is important to share and we thank you for sharing your story with us!

"*" indicates required fields

Child’s Profile

Please answer the questions below as completely as you like.
Please understand that we may only use a portion of what you submit, and we cannot guarantee that every story submitted will be featured.

Name*
MM slash DD slash YYYY
MM slash DD slash YYYY
Address*

Your Contact Information

Please provide your contact information so we can reach out with any follow up questions.


Questions

Please answer the following questions to best of your ability.


Attachments

Please submit as many photos of your child and family as you would like to share with us. The pictures that are most useful are about 2MB in size. This can be accomplished with a smartphone or camera. AT LEAST ONE IMAGE REQUIRED

Drop files here or
Accepted file types: png, jpg, jpeg, mp4, mov, Max. file size: 5 MB, Max. files: 5.



    By filling in the form above, I am giving the INADcure Foundation permission to share the attached photos and submitted information on the INADcure Foundation website, blog, social media, brochures, newsletters, and other media. I also understand that submitting this information is not a guarantee that this story will be featured.

    Required*