Contact Us at (201) 274–5204

A Mother’s Quest To Save Her Child

Winter 2023

Fairfield, NJ: Our incredible founder, Leena Panwala, was featured in her local community’s magazine this winter. She shared the story of her daughter Ariya’s diagnosis with the devastating neurodegenerative disorder, Infantile Neuroaxonal Dystrophy (INAD), and how she took action to create this foundation as an answer to the lack of treatment options for children with PLA2G6-associated neurodegeneration (PLAN).

Fairfield Family & Friends Magazine Cover Winter 2023
A Mother's Quest To Save Her Child - page 1
A Mother's Quest To Save Her Child - page 2