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Help us on our mission of finding a cure for INAD/PLAN. Amelia’s family is fundraising to help us bring our gene therapy program to a clinical trial:

Amelia N

15 Years Old | Singapore

About This Superstar

Age of Diagnosis
Amelia’s Diagnosis was confirmed one week before reaching her 15th Birthday on 23 Sep 2021.

How INAD Has Impacted Their Life
Amelia was fussing because she knew that she is losing every part of herself too quickly.

Favorite Activities
She loves watching netflix!

Favorite Foods
Amelia is tube fed but enjoys cold stuff like ice cream or trying something different.

Favorite Books
interactive and sensory books.

Parent’s Favorite Motto or Expression
Live in the moment and be thankful always

What They Would Like the World to Know About Their Experience Living with INAD
I wish for everyone to know about INAD so that others can get diagnosed.

Special Fun Facts
Amelia communicates through eye gaze machine

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