Ella E.

5 Years Old | Nevada, USA

About This Superstar

Age of Diagnosis
2 years old

Finding A Diagnosis:
After first diagnosis of cerebral palsy and rapid regression of acquired skills, Whole Exome Sequencing (WES) testing gave INAD diagnosis.

How INAD Has Impacted Their Life
INAD has taken away all independent skills.

Favorite Activities
Swim therapy,snuggles and watching cartoons with big sis!

Favorite Foods
When I could eat by mouth (g-tube fed now) my favorite foods were my daddy’s waffles, raspberries and french fries.

Favorite Television/Movie Character
Poppy from the Trolls movie and Minnie Mouse.

Favorite Books
100 first words touch book

Parent’s Favorite Motto or Expression
Enjoy every day as if it’s your last!

What They Would Like the World to Know About Their Experience Living with INAD
INAD has taken so much away from me including my ability to smile but every day we keep the hope that one day there will be a cure.

Special Fun Facts
I have an awesome big sister and a kitty named Lance. My family and friends are my world.