5 Years Old | Nevada, USA
2 years old
After first diagnosis of cerebral palsy and rapid regression of acquired skills, Whole Exome Sequencing (WES) testing gave INAD diagnosis.
INAD has taken away all independent skills.
Swim therapy,snuggles and watching cartoons with big sis!
When I could eat by mouth (g-tube fed now) my favorite foods were my daddy’s waffles, raspberries and french fries.
Poppy from the Trolls movie and Minnie Mouse.
100 first words touch book
Enjoy every day as if it’s your last!
INAD has taken so much away from me including my ability to smile but every day we keep the hope that one day there will be a cure.
I have an awesome big sister and a kitty named Lance. My family and friends are my world.