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Help us on our mission of finding a cure for INAD/PLAN:

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Heitor M.E.S.

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6 Years Old | Brazil

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About This Superstar

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Age of Diagnosis
3 years

Finding A Diagnosis:
It took a few years to discover the diagnosis, which was painful for the whole family.

How INAD Has Impacted Their Life
It completely change our lives, I stopped my life to take care of Heitor. Nowadays he lives in bed totally dependent on care, my family and I do our best to have fun with him and despite everything we are happy.

Favorite Activities
He lost everything, he doesn’t communicate anymore,

Favorite Foods
He lost everything, he doesn’t communicate anymore,

Favorite Television/Movie Character
Iron Man, Chicken

Favorite Books
He lost everything, he doesn’t communicate anymore.

What They Would Like the World to Know About Their Experience Living with INAD
That even though he has a degenerative disease, he has a family that loves him that does everything to see him well

Special Fun Facts
We like to sit together on the couch watching tv is one of the best moments I love.

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To share your child’s story with us fill out our Child Stories Form

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