Contact Us at (201) 274–5204

Help us on our mission of finding a cure for INAD/PLAN. Salvador’s family is fundraising to help us bring our gene therapy program to a clinical trial:

Salvador S.

5 Years Old | Portugal

About This Superstar

Age of Diagnosis
18 months

Finding A Diagnosis:
It took almost 2 years to have the final diagnosis. And when it came, All fall

How INAD Has Impacted Their Life
It has a strong impact of course, because when other children start to gain capacities, he started to loose the few he had.

Favorite Activities
Listening to instruments

Favorite Foods
He likes all, but I will say fish

Favorite Television/Movie Character

Favorite Books

What They Would Like the World to Know About Their Experience Living with INAD
Getting to people know that INAD exists is a great step.

To share your child’s story with us fill out our Child Stories Form